Parkinson's Disease

Life with Parkinson’s Disease Part 6: PPMI Appreciation Dinner

Near the end of every summer, an invitation arrives in my mailbox. It's my reward for completing another year of the PPMI clinical trial at the Cleveland Clinic - an appreciation dinner hosted by the Michael J Fox Foundation. It has been held annually at the Cleveland Racquet Club. It's a beautiful facility. There are always… Continue reading Life with Parkinson’s Disease Part 6: PPMI Appreciation Dinner

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Parkinson's Disease

Living with Parkinson’s Disease Part 5: PPMI’s “Long” Visit

The day begins some time around 9 AM. I check in to the Mellon building and make my way to the third floor. Jennifer, the study coordinator, meets me in the third floor waiting room and we walk down the hall to the now familiar study room. Following two hours of questionnaires and a visit with Dr. Fernandez… Continue reading Living with Parkinson’s Disease Part 5: PPMI’s “Long” Visit

Parkinson's Disease

Living with Parkinson’s Disease Part 4: the PPMI Visit

  Most PPMI visits are held at the Cleveland Clinic's Mellen Center for Neurological Restoration (also known as the "U" building), a building I would come to know well over the next five years. After checking in at the first floor reception area I ride the elevator to the third floor where I sit in the waiting… Continue reading Living with Parkinson’s Disease Part 4: the PPMI Visit

Parkinson's Disease

Living with Parkinson’s Disease Part 3: the DaTscan

(In 2011 I signed on as a research patient with the Parkinson's Progression Marker Initiaive (PPMI), at the Cleveland Clinic. Funded by the  Michael J Fox Foundation, PPMI is searching for biomarkers, or any characteristics that can be measured in a person that can be tied to the disease. I would not be given any medication… Continue reading Living with Parkinson’s Disease Part 3: the DaTscan

Parkinson's Disease

Life with Parkinson’s Disease Part 2: Finding the PPMI Clinical Trial

After my first, disturbing visit to the doctor, I spent the following months reading and researching. The more I learned, and the more time that went by without my world coming to an end, the less disturbed I became. Parkinson's is different for everyone who lives with it. Patients progress at different rates and my… Continue reading Life with Parkinson’s Disease Part 2: Finding the PPMI Clinical Trial

Parkinson's Disease

Life with Parkinson’s Disease: Part 1- The Tremor

I was 48 years old when I first noticed that something was amiss. It started in my little finger. I was sitting quietly and noticed a slight tremor. It was the oddest thing I'd ever felt. It didn't prevent me from doing anything that I wanted to do though, so I tried to ignore it.… Continue reading Life with Parkinson’s Disease: Part 1- The Tremor

Parkinson's Disease, Retirement

Living With Parkinson’s Disease: Quitting My Sedentary Job

Parkinson's Disease was not the reason that I began to think about quitting my job. But once I began to take a long look at my life and my situation, I realized just how much my job was aggravating my disease.  It was quickly added to my long list of reasons why I needed to get my life in order and to… Continue reading Living With Parkinson’s Disease: Quitting My Sedentary Job

Parkinson's Disease

Living with Parkinson’s Disease

I was diagnosed with Parkinson's Disease in 2009. For six years, only a few of my family and friends have known that. It's one of the reasons I have now elected to quit my job but it isn't the sole reason, or even the main reason. My disease progression is slow and I am able to… Continue reading Living with Parkinson’s Disease